I didn't think I would survive yesterday. Seriously, I thought it would be the end of me and our family. Many, many thanks for all the love and support.
In her discharge survey, Sissy reported that she hasn't learned anything while away at the hospital, that she anticipates returning to her previous behaviors. *sigh*
And of course, the hospital was unprepared with the appropriate paperwork for her discharge. School records? We still don't know if Sissy will be repeating fifth grade or if, after so many years fighting, she'll finally get an IEP so she can go on to sixth grade? The jury is still out.
How is she? How are we?
She is honeymooning but I'm keen. I can hear it in her voice and see it on her face. It's all right there, just under the surface. Earlier today I was predicting her to return to "normal" by tonight. She's still maintaining so I'll bump my guess back 12 hours. Tomorrow morning. Hygiene? Good gosh, I just don't understand how a child of her age can personally tolerate being so grimy, how she can not even notice? Or is it that she doesn't care?
And we are? In shock, numb, bewildered, angry, panicky, afraid, anxious, all of the above.
Tomorrow morning, we meet the new IFI team.