Last week Sissy's two agencies had an exercise in futility attempting to jump through all the hoops and cut all the red tape to get Sissy an emergency placement for a weekend respite. Thursday night last week we had a placement. Friday afternoon at 2:30 we had no payment for said respite.
This week they tried again and at 3:15 I was speaking to our respite provider to discuss Sissy's meds and routine. I picked the kids up from school and finger-motioned for WG to come to me so I could whisper to her.
She walked closer and I said, "guess what? A whole weekend without Sissy screaming."
"Huh? I don't get it?"
"Sissy is spending the weekend with another family."
WG and I were giddy. We took AB to hippotherapy and she ran around and I giggled. "A whole weekend!" we kept shouting at each other in delight.
At 7:00 I was pulling out of the foster families driveway, an enormous grin plastered on my face.
After a fun evening chatting it up on the phone (until 2 am!) I went to bed and slept and slept and slept.
Best night of sleep I've had in a very long time.
Even with the alarm, it's still hard to sleep when you know your child is so volatile and is a threat to your safety. When we sleep, we are the most vulnerable and with Sissy here, I can't ever let my guard down.
If all goes well, we have this family every other weekend through December 26 when Sissy's agency reauthorizes the funds for respite as needed. I have every intention of chatting it up with her providers to let them know how DESPERATE we are if I didn't know I was sleeping so poorly until I finally had the chance to sleep a whole night through. The first time since her discharge from RTC last March.